Hear our Voices! Self-advocates meet in Brussels

Our work brings the voice of people with intellectual disabilities and their families where decisions about their future are made. This has always been incredibly important. It is even more so with the Covid pandemic drastic impact on their rights and lives. Being visible and vocal on issues directly affecting millions of people requires your...

Hear our Voices! Self-advocates meet in Brussels

Self-advocates being strong, loud and clear at the “Hear our Voices” conference

Click here for the easy-to-read version

“We don’t need help, we need support!” – this was one of the main statements made at Inclusion Europe’s “Hear our Voices” conference, which took place in Brussels.

More than 70 self-advocates and their supporters from nearly 20 countries came to the event to discuss topics such as being a board member in an organisation, being included in the community, setting up a self-advocacy group or the right to vote.

In workshops led by self-advocates, participants talked about their own experiences and shared best practices:

“Building my net” was the title of Elisabeta Moldovan’s workshop. An activist at Inclusion Europe’s Romanian member “Ceva de Spus”, Elisabeta stressed the importance of having a close circle of friends: “Many people with disabilities find it difficult to find friends. A few years ago I was one of them”, she explained while sharing tips on how to get to know trustworthy people with similar interests.

Ana Martínez from Inclusion Europe’s member Plena Inclusión drew a visual report of the conference

 

“People in institutions can’t make their own decisions”

In his workshop entitled “My home, my city, my country: being included”, Hungarian self-advocate László Bercse from Inclusion Europe’s member ÉFOÉSZ talked about his work producing easy-to-read information and teaching about it, and how his activism helps him with being included: “People in institutions can’t make their own decisions, they have no say about their future”, he said and pointed out how persons with intellectual disabilities can be supported so they do not need to live in institutions.

Group leader Andreas Zehetner described the inclusive governance structure of Inclusion Europe’s member Lebenshilfe Austria in his workshop “Leading from the top: self-advocates on the board”: A “Trialogue” of councils of self-advocates, relatives and the organisation’s employees lead Lebenshilfe Austria and make sure that different viewpoints contribute to the decision-making process.

“Meeting with fellow self-advocates is the only way to discuss about common problems and find out how others have solved them!” Our vice-president Senada Halilčević emphasized this at her workshop “Find your voice”. The experienced self-advocate, who works at Inclusion Europe’s Croatian member ASA, encouraged participants to not stay silent in the face of injustice, and instead stand up and fight for their rights.

Inclusion Europe’s board member Harry Roche, finally, led a workshop on voting rights, aptly named “I have a say in politics”. Harry, who is an active campaigner at Inclusion Europe’s UK member mencap, had participants enact the voting process, including a ballot box!

It was also voting rights that he talked about at the 4th European Parliament of Persons with Disabilities, which all Hear our Voices participants attended. Self-advocates were impressed with the high-level event, which saw a record number of persons with intellectual disabilities participate (read more on Harry Roche’s speech and the EPPD in this article).

Self-advocates in front of the European Parliament on the European Day of Persons with Disabilities

We must make sure that our voices are being heard stronger, louder and clearer!

Sara Pickard

On the last day of the “Hear our Voices” conference, self-advocates discussed their demands and how to move forward.

Sara Pickard, an activist at Inclusion International representing Europe, led this round-up session which led to a number of important statements:

“In some countries, people with intellectual disabilities can vote and in others, they can’t. We need to fight for the same rights everywhere!” was one of these messages, and also the affirmation that self-advocates can contribute to put EU policies in action. – The demand that “politicians should live our lives for one day so they can better understand how it is” was another comment, followed by the statement mentioned earlier: “We don’t need help, we need support!”

The conclusion that Sara Pickard draw was widely welcomed by the participants: “We must make sure that our voices are being heard stronger, louder and clearer!”

Participant’s tweet: “Thank you very much for inviting us to this great event! Together we can achieve more!” Find all the participants’ posts on Twitter and Facebook.

 

 

Easy-to-read version

Click on a word which is in bold to read what it means.

 

We don’t need help, we need support.

This is what self-advocates said

during Inclusion Europe’s Hear Our Voices conference.

 

The Hear Our Voices conference was in early December

and took place in Brussels.

Brussels is a city in Belgium.

 

There were more than 70 self-advocates and their supporters

at the conference.

They had come from nearly 20 countries.

Participants discussed topics like

  • being a board member in an organization,
  • being included in the community,
  • setting up a self-advocacy group,
  • and the right to vote.

 

During the conference there were workshops led by self-advocates.

In these workshops participants shared their own stories

and talked about some good examples.

Elisabeta Moldovan did a workshop called “building my net”.

Elisabeta Moldovan is a self-advocate from Romania.

Elisabeta is also an activist

with Inclusion Europe’s Romanian member Ceva de Spus.

Ceva de Spus is a self-advocacy organisation in Romania

that helps people speak up for themselves.

 

Elisabeta talked about how important it is to have

a close circle of friends.

Elisabeta said that many people with disabilities find it hard

to make friends.

She said that until a few years ago

she was one of those people.

Elisabeta then shared tips

on how you can get to know people you can trust

with similar interests.

 

László Bercse did a workshop called

“My home, my city, my country: being included”.

László is a self-advocate from Hungary.

László is also from Inclusion Europe’s Hungarian member, ÉFOÉSZ.

ÉFOÉSZ is an organisation in Hungary

that works to protect the rights of people with intellectual disabilities.

 

László talked about how his work as an activist

helps him be included.

László also talked about how people with intellectual disabilities

can be supported so they do not have to live in institutions.

 

Andreas Zehetner did a workshop called

“Leading from the top: self-advocates on the board”.

 

Andreas is a self-advocate from Austria.

Andreas is also on the board of Inclusion Europe’s Austrian member

Lebenshilfe Austria.

Lebenshilfe Austria is an organisation in Austria

that works to protect the rights of people with intellectual disabilities.

 

Andreas’ workshop talked about how self-advocates

can be involved by being on the board of an organization.

Participants in the workshop also discussed issues

that matter most to them.

 

Senada Halilčević did a workshop called: “Find your voice”.

Senada is a self-advocate from Croatia.

Senada is the Vice-President of Inclusion Europe.

Senada also works at Inclusion Europe’s Croatian member, ASA.

ASA is a self-advocacy organisation in Croatia

that helps people speak up for themselves.

 

Senada said that meeting with other self-advocates

is the only way to talk about common problems.

Meeting with other self-advocates also helps to find out

how other people have dealt with these problems.

 

Senada also encouraged participants to speak out

and to stand up for their rights.

 

Harry Roche did a workshop called: “I have a say in politics”.

Harry is a self-advocate from the United Kingdom.

Harry is an Inclusion Europe board member.

Harry is also an active campaigner

at Inclusion Europe’s UK member, Mencap.

Mencap is an organisation in the United Kingdom that

works to protect the rights of people with intellectual disabilities.

 

Harry’s workshop was about voting rights.

He had all the participants

of his workshop do a pretend vote.

 

Harry also talked about voting rights at the

4th European Parliament of Persons with Disabilities.

 

All the Hear Our Voices participants also attended the Parliament.

Self-advocates enjoyed attending this event

which had a record number of people

with intellectual disabilities participate.

 

On the last day of the Hear Our Voices conferences,

self-advocates talked about their demands and how to move forward.

 

Sara Pickard led the last session.

Sara Pickard is a self-advocate from the United Kingdom.

She works with Inclusion International

as a self-advocate representing Europe.

 

During the last session self-advocates

made some important statements.

One of the important statements was that

we need to fight to make sure

everyone has the same rights everywhere.

For example, in some countries

people with intellectual disabilities can vote.

But in other countries, they can’t.

The should be able to vote in every country.

 

Another statement made was that self-advocates can help

European Union policies be put into action.

 

Another statement made was that politicians should

live the lives of people with intellectual disabilities

for a day to see what it is like.

Also that people with intellectual disabilities do not need help,

they need support.

 

At the end of the conference Sara Pickard said:

We must make sure that our voices are being heard

stronger, louder, and clearer!

Our work brings the voice of people with intellectual disabilities and their families where decisions about their future are made.

This has always been incredibly important. It is even more so with the Covid pandemic drastic impact on their rights and lives.

Being visible and vocal on issues directly affecting millions of people requires your support. 

Become Inclusion Europe supporter and help us keep doing our work.

 

 

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