European Disability Forum, International Federation for Spina Bifida and Hydrocephalus and European Patients’ Forum have come together to create a survey.They are organisations that work on disability or healthcare issues. They want to find out how healthcare is for They want to make sure European laws It is important countries follow these laws You can help by answering their questions Click here to do the survey. |
European Disability Forum (EDF), International Federation for Spina Bifida and Hydrocephalus (IF) and European Patients’ Forum (EPF) have released a questionnaire to understand more about experience of persons with disabilities and persons with chronic conditions using healthcare.More specifically, they hope to measure and compare the impact of the Cross-Border Healthcare Directive on persons with disabilities and persons with chronic diseases in Europe to influence the healthcare debate at the EU level and make sure that full and non-discriminatory implementation takes place in all member states.
Cross-border healthcare refers to a kind of care in which the patient from one EU member state (where he/she is insured) uses the health services in another member state. People often seek healthcare outside of their home country when a specific treatment is unavailable, the specific care in the other country is considered better or on doctor’s recommendation.
The Cross-Border Healthcare Directive is an essential piece of EU legislation impacting directly on lives of people with disabilities and people suffering from chronic conditions who may be seeking care in another EU member state. Following the EU review on the progress in implementing the UN Convention on the Rights of Persons with Disabilities (CRPD), the CRPD Committee recommended in its Concluding Observations in September 2015 to assess the gaps of this directive.
No in-depth knowledge is required to complete the survey, questions are about experience with cross-border healthcare. The survey is targeted at IF, EDF and EPF members and their networks; persons with disabilities and chronic diseases or parents of children affected by disability or chronic disease.
The results of the survey are planned to be presented at the IF event in the European Parliament at the end of the year December 2016. The results will be also made available on IF website www.ifglobal.org.
To take the questionnaire, click here.
It is available until the 31 August 2016.