Belonging. Our new plan to end segregation of people with intellectual disabilities.
People with intellectual disabilities and their family members still face segregation, and discrimination.
Their rights are being denied on daily basis.
They cannot live the lives they want.
- People with intellectual disabilities, and people with complex support needs, are most likely to be institutionalised! They are also being left behind in institutions when others get support to move out into the community.
- Most students with intellectual disabilities must go to segregated schools. Many cannot go to school at all!
- Only small number of people with intellectual disabilities have proper jobs!
- People with intellectual disabilities are even prevented from voting (.pdf) in more than half of the European Union countries!
End segregation - Soufiane El Amrani for Inclusion Europe
Inclusion Europe wants segregation of people with intellectual disabilities to end by 2030!
With our members, other disability organisations, activists, and experts we fight for Europe where people with intellectual disabilities enjoy equal rights, and participate fully in all aspects of life.
- Where they can decide about their lives, including in elections, not being deprived of this basic right by legal capacity laws.
- Where they live and have support in the community, not being segregated and institutionalised.
- Where they go to mainstream schools, have jobs and are respected in their social roles, are not kept apart from others, left without proper education or future.
Join us, as we intensify our work to help all people with intellectual disabilities to realise our shared ambitions: Of living in your own place. Having friends. Making your own choices. Being good at something. Belonging.
Deinstitutionalisation means ensuring people are in full control of their life
Let people make their own decisions!
The UN Convention on the Rights of Persons with Disabilities (UN CRPD) clearly states that “persons with disabilities enjoy legal capacity on an equal basis with others in all aspects of life”.
Inclusion Europe wants countries to change their law so that people with intellectual disabilities no longer have full guardianship. Instead of that they should have supported decision-making. Supported decision-making means that people with intellectual disabilities have someone who supports them in making decisions. With supported decision-making people with intellectual disabilities can keep their rights.
Inclusion cannot be a “good practice” lottery. It is a right, and it must become the norm in our societies.
Institutionalisation happens in places where people are treated in groups (based on disability, for example), away from others, their lives directed not by own wishes and needs, but by the institution’s rules and protocols.
- Segregated institutional support must be replaced with support that helps each and every person to be part of the world around them: be part of a family, have friends, have a job, be good at something. To belong.
- There must be proper support for families too, so they don’t have to “choose” between dedicating all energy to one member, or removing them into an institution. With the right support, families can be just that – families. Not full-time carers, therapists, administrators, organisers.
Universal solutions don’t exist – universal principles do: People seek human connections, stability. That must be the guiding principle of any support system. Independence and inclusion are achieved by respecting each and every person’s needs and providing a spectrum of individualised support (.docx).
People leaving institutions need support establishing relations, learning about outside world and dealing with the consequences of institutionalisation (including support to cope with abuse they experienced in the institution).
There are still over 1,400,000 people living in institutions in the EU.
The 2020 Report on the Transition from Institutional Care to Community-Based Services in 27 EU Member States marks 10 years since the publication of the first report addressing the issues linked to institutional care reforms and to find solutions for more humane, person-centred and individualised models of care.
The report presents these key findings:
- the number of people in institutions does not seem to have substantially changed over the past 10 years;
- the number of children in residential care has slightly decreased, with them moving to live with their families, being fostered, adopted, or reaching majority and therefore leaving residential care for children;
- in all the 27 EU countries, people are living in residential care, with only a small number of it being primarily small-scale and community-based, e.g. dispersed among ordinary housing in the general community. Small-scale residential services still represent a minority of the care settings in most of the 27 EU countries;
- in many countries, and especially those who started the process of deinstitutionalisation some time ago persons with intellectual disabilities and people with complex support needs are most likely to still live in institutional settings.
Today I am Senada Halilčević, a person with a disability, but I am much more than that. I am a sister, daughter, friend, colleague, athlete, employee, and every day I try to show that I can achieve everything I want. https://t.co/KpwvpDd1ze pic.twitter.com/AlsSBdNpwE
— Inclusion Europe (@InclusionEurope) June 28, 2022
Inclusion cannot be a “good practice” lottery.
It is a right, and it must become the norm in our societies.
— Inclusion Europe (@InclusionEurope) January 12, 2022
Our campaign #EndSegregation is loading. Join us, as we intensify our work to help all people with intellectual disabilities to realise our shared ambitions: Of living in your own place. Having friends. Making your own choices. Belonging. https://t.co/2AjnVWx9rl pic.twitter.com/5r6Yb6i6l0
— Inclusion Europe (@InclusionEurope) June 14, 2022
Our work brings the voice of people with intellectual disabilities and their families where decisions about their future are made.
This has always been incredibly important. It is even more so with the Covid pandemic drastic impact on their rights and lives.
Being visible and vocal on issues directly affecting millions of people requires your support.
Become Inclusion Europe supporter and help us keep doing our work.